Autism and PDA
Autism
Autism a different way of experiencing the world than what society expects. The autism spectrum is not linear ranging from high to low functioning, but instead it is like a color spectrum with each autistic person being represented as a constellation of traits across that field of color. Each autistic person is unique and has their own experience of the world. Also, the autistic experience is dynamic with the presentation of traits ranging based on factors such as environment, schedule, sensory input, and others.
Commonly identified traits of autism are differences in communication and relationships, preferences for routine and predictability, and sensory differences. All of these traits can be disabling in a society that is centered around social norms that are not inclusive of these differences. All of these traits can be sources of nervous system dysregulation the autistic individual is unable to have their needs met. Adding to the possibility of dysregulation is that these traits often increase the likelihood of being understood by others.
Does this mean we should try to help autistic people hide their autism? No! Our task in supporting an autistic person is to support nervous system regulation.
PDA
PDA stands for either Pathological Demand Avoidance or Persistent Drive for Autonomy. PDA is a theorized profile of autism that is being slowly being recognized by families and professionals. Even though the language first started showing up in literature in the early 2000s, but many clinicians have still never heard of it. Due to the limited awareness, many families receive lots of guidance and feedback from professionals that never quite seems to fit their loved one or their situation. While there is still a limit to the research and consensus amongst clinicians that have some awareness of PDA, for the families supporting a PDA loved one, this is a very real experience.
But what is it? I view PDA as the experience of demands or expectations being a potential source of nervous system dysregulation that is best supported through providing ample space for autonomy in ones life. While many people feel some level of frustration from others’ expectations, those who identify with PDA feel their internal reactions at a much higher level, and it frequently goes from being internal to also external. If you or someone in your family experiences PDA, you are likely not so concerned with the debates about diagnostics etc., you are looking for support, so book a consultation to see if my approach may resonate for you and your family.